Friday, June 28, 2013

Summer, summer, summer time.....

Mom is back to work, Dad is home for the summer and everything is going well. Keira has been on steroids and getting high doses of Chemo. She is experiencing a lot of side effects but her counts are high and we haven't had to go to the E.R. with fever so we are very thankful. We are planning a trip to visit mom-mom and pop-pop for Fourth of July weekend. This will be the first time traveling. We got approval from her oncologist and were thrilled to find out that the chief of Oncology at their local area hospital studied under Dr. Halligan so if anything happens we know our Dr. will be taken seriously and his directions will be followed. It's only three hours away but of course we are nervous. If we get to go we'll be visiting Knoebels which is one of the twins favorite places. So far Keira has been able to enjoy the summer so we're hoping she stays out of the hospital and gets to have more fun!

Thursday, June 20, 2013

Hide the pickles and cheese sticks............ steroids again!

The past two weeks have been really great while we had a break from chemo. Keira has been in great spirits, the picture is her "modeling" on the front lawn so I would take her picture. She decided to where a fancy dress to go to breakfast for Daddy.on Father's Day. Though she really doesn't need any occasion to get dressed up.

Keira made counts today and started back on Chemo.. She is also taking a round of Steroids. She is only taking them for 7 days straight and then gets a break before starting them again in July. Hopefully the 4 A.M. cravings will be kept to a minimum.


Monday, June 10, 2013

Super Keira strikes again!

A few months ago Keira was filmed at clinic getting her vitals done and having a spinal tap. This video will be used to edcuate patients and parents on what this procedure is and how it is performed. Check out our amazing litle sweetheart. The video is cute but does get a little graphic toward the end.

http://www.curesearch.org/Lumbar-Puncture/#video

Wednesday, June 5, 2013

Today Keira has been in treatment for six months. Wow how time flies!

   We have learned so much over the past six months. Most of it we would really rather not know such as the names and side effects of cancer drugs, the intensity of the treatment plan for Leukemia , the way to smuggle extra calories into the belly of a stubborn four year old but most of all we’ve learned how absolutely wonderful people can be. We are blessed with wonderful friends, family and neighbors. Even strangers have said and done such wonderful things to encourage Keira. We marvel at the kindness and generosity that has been shown to us. I’m sure that when all is said and done and I think back on this time the fear and the agony of seeing Keira suffer will be just a vague memory but the way my heart warms when someone says or does something kind for us, that will always be with me. If you are reading this, you've kept Keira in your thoughts and prayers and I can’t thank you enough!
Last week Keira finished up one stage of her treatment and in two weeks she will start another. Her doctors are pleased with her progress and believe that she is responding well to the Chemo. They will verify that with a bone marrow biopsy some time this month.  In two weeks she will start the most intense Chemo that is on her “road map”. Her doctor told me to expect a hospitalization due to fever but the actual Chemo can be admitted outpatient which is much better for all of us. We still have a long way to go but we couldn't be more pleased with how Keira is responding so far. Please keep sending that positive energy………… It’s working!!!!