Friday, October 18, 2013

Feeling good!


Keira is doing really well. She will begin the maintenance phase of her treatment on October 29. During maintenance her chemo will be delivered in lower doses and she will have to go to the clinic about once a week. She will continue this treatment for the next 2.5 to 3 years. We are really getting into our new routine, Keira's teacher is here three days a week and she is doing very well. We are still able to get out a lot but soon with flu season we will have to be a lot more selective about where and when we go out. The good thing about maintenance is that she should have good white blood counts unless she gets sick. Unlike the earlier phases of treatment when the chemo caused her white blood cells to drop all the time. 

Keira's hair is coming back in. She can still lose it anytime she gets a certain medication that she will need periodically for the duration of her treatment but for now I think we might actually see some hair for the winter. 

We are still having a hard time getting calories into Keira. Even with Pediasure and an appetite stimulant it is tough because she wants to eat cucumbers and apples all day long. I have to actually tell her "no more cucumbers unless you dip them in dressing" or "no more apples until you eat some ice cream". 

She is in good spirits. This morning when she woke up she told me "I must have overslept" I asked her why she said that and she said "you were already up". "I know, there was someone using a chain saw or something this morning before 7:15 on my day off" I told her. "Why" she asked. "I don't know maybe they were cutting down a tree but it wasn't very nice for them to be out there that early". Her response.... "Poor tree, I hope it will be ok. I love trees".... honestly I don't think there is a kinder kid in the whole world. 


Tuesday, October 1, 2013

Oh yeah an entire month with no hospitalizations!

Keira was not in the hospital overnight for the entire month of September. Quite amazing! Hopefully October goes this well!