My name is Keira.... you can call me Keira.

My plan to update more frequently has not worked out too well. Since the twins birthday we've been super busy. Keira and Brendan are first graders now which means a lot of homework... really a surprising amount.

Keira is feeling good. She is pretty used to her medication routine but she still has bad days. This Tuesday she wasn't well enough to go to school in the morning after methatrexate, she slept for a while and had zofran and was able to go in around noon. She still has all of the emotional side effects too that are really tough on her and us.

Halloween was really fun, Keira was a witch and Brendan was as swamp monster, lots of candy was had by all. Their Christmas lists have already been in the mail for weeks so I think it is safe to say we're getting ready for the holidays.

This Saturday we will go to the second annual Lady Bug Ball. The first Lady Bug Ball was very soon after Keira was diagnosed and it meant a lot to us to get out and be around people who understood what we were going through. We've come a really long way since then and we feel incredibly blessed that we learned about the Kisses for Kyle foundation and have been able to become part of the KFK family.

Keira announced to us a couple weeks ago that she doesn't like Kiki anymore so I have to do my best not to call her that, even though I love it.

Here is Keira first thing in the morning, always with a smile on her face. Such a beautiful, sweet girl.

I will post pictures from the Lady Bug Ball, maybe I'll even remember to do it before the new year.

"Mom, just make sure it doesn't rain on our birthday, okay"

Keira continues to respond very well to treatment. We now have eight months left of chemo. She has adjusted pretty well to the maintenance regimen. She has to take steroids for the first five days of every month which can be really tough. She can't sleep and is hungry all the time. The side effects from her various medications include mood swings, paranoia, irritability, anxiety and a host of others. She has tantrums sometimes like a toddler which is embarrassing when it happens in public. The first two weeks of each treatment cycle are the toughest. We just started this cycle on Monday.

These side effects are insignificant in the grand scheme of things but they can be tough to deal with from day to day. The worst is when she gets very upset because she will scream at me that she hates me or I am the worst mother and then ten minutes later she is hysterical and apologizing because she feels terrible and can't control herself. I am getting a glimpse of what it will be like to have a teenager  and quite honestly.... I'm scared.

Other than the side effects, everything is going great. Keira and Brendan are enjoying the summer very much but really can't wait for their birthday so they keep wishing it away. The other day in the car she said "Mom, just make sure it doesn't rain on our birthday, okay" she was so matter of fact that for a minute I had to remind myself (and then her) that I have no control over the weather.

The twins are taking swimming lessons and we were able to spend a day in Ocean City courtesy of Kisses for Kyle. We had a really great time. Then we went to visit mom-mom and pop-pop and of course went to Knoebel's for a couple days and she had an absolute blast. She loves the rides even the really scary adult rides that make me feel sick just watching.

This picture was taken over the weekend.... you can see how incredibly healthy she looks and how nice her hair is coming back. I'm going to try to post more to the blog. I know everyone is still very concerned about Keira and it means so very much to us.

Keira is doing great

I've been so bad about updating the blog because things have been going well and there isn't much to report. Keira was able to start school on April 28. She went for a week and then a teacher had Shingles so she missed last week. She'll be back again on Monday. Overall she is doing very well. Her hair is growing in and looks so cute. She has gained all of her weight back and a little "cushion". She was in the hospital in February and March for short periods while she was sick but they didn't have to keep her for weeks like they did before she was in maintenance.

In April we got to take Keira and Brendan to Disney for 5 days. They had an absolute blast. We didn't say anything for the months leading up to going because we wanted to get a Disney surprise video and well, we were surprised. This video cracks me up. 

Christmas was incredible.

Keira attended 7 holiday parties this year! She has been feeling good and not much has changed. I learned last week that the medicines she is on will be repeated over and over again for the next 16 months while she is in maintenance. That will make it easy for us to dispense (she takes 7 or 8 meds daily depending on the time of the month). I'm a little stressed because the steroids are still causing sleeplessness and mood swings hopefully the side effects will dwindle the longer she is on them. We had an amazing Christmas thanks to Kisses for Kyle and St. Christopher's. We are looking forward to 2014!!!!