Saturday, November 30, 2013

It's the holiday season......

Thanksgiving was awesome! We had such a wonderful time at my cousin's new house. Keira enjoyed the turkey enough to have seconds. Her appetite has been wonderful without steroids or an appetite stimulant so we are thrilled. One of the drugs she is taking (not sure which) is causing sleeplessness. Since last week she has been getting up at 4 a.m and cannot get back to sleep. It has been tough on us because she gets up several times during the night and then is ready to go at 4. We haven't been this tired since we had infants. Last night she work up at 4 but went back to sleep until 7 so I'm really hoping she is going to get back to a normal sleep schedule.

We are so very thankful for how wonderful Keira is doing. We have now been through three consecutive months without a hospitalization. There isn't much to blog about because she is simply doing great!!!!

We tried to take a picture for our Holiday cards today but my camera decided to stay at my cousins and help with leftovers and I don't love the ones from the iphone so we'll try again tomorrow but here is a sneak preview.


Saturday, November 9, 2013

Keira's last chemo treatment is scheduled for April 4, 2015

It is good to know there is an end in sight and they are predicting that Keira will finish six months sooner than they thought she would  when they gave us an update in January.  Keira continues to respond well to treatment and overall is doing really well. She has gained weight and looks much healthier. She is back on steroids so she is eating everything in sight.

Last week Keira and Brendan got to model ins a fashion show at a Kisses for Kyle event they had so much fun. Halloween was wonderful and they are so excited for Christmas. Being back to work is tougher than I imagined it would be, it is really hard sometimes to focus when in my heart I want to be with Keira. I'm beyond grateful for my job and the ability to keep it but I underestimated how tough it would be to juggle so much.

A tough part about having a child with cancer is that you get to know a lot of other kids and families battling cancer. Last week we learned that a young man that we knew lost his battle. He had gone through treatment once and then relapsed. He was a teenager so Keira didn't spend much time with him but his younger brother is her age and she played with him all the time at clinic. Keria also loved his mom, she was always sitting in her lap and playing with them.

Hearing about a loss stirs up so many emotions, my heart aches for his family, I am comforted that he is finally at peace and as horrible as it is to admit thankful that it wasn't my baby. Every day with Keira is a blessing!

The kids asked me to tape them "making a show" it is pretty cute and you can see how well Keira is doing.