Keira is doing great. This weekend on the spur of the moment (a few days in advance) we decided to go to my parents house three hours away. The road trip was super fun and Keira did great. I had to pack her meds and braces but I barely thought about the fact that she could get sick and we would be stuck there. (Ok, barely is a bit of an exaggeration but it didn't occupy my mind the entire time so I think we are making progress.)
Keira is wearing her leg braces all day now. She is learning how to put them on by herself. As she does with everything, she is taking it all in stride.
Her home bound schooling started today. Her teacher will be here Monday, Tuesday and Wed. for about an hour and forty-five minutes. She did very well tonight so hopefully it stays that way.
I've been updating infrequently because everything is going so well.... hopefully it stays this way!!!!
Monday, September 23, 2013
Thursday, September 12, 2013
Bella Ballerina.... YAY
Yesterday I took Keira to the shoe store and they were able to fit Bella Ballerina sneakers over her braces. She was thrilled and so was I. Other than new cool shoes there is not much to update everyone on (which is wonderful). Keira is getting chemo pretty much every week at the clinic but no chemo at home right now which is very nice. Yesterday the kids were talking about Halloween costumes, this year is flying by.
Saturday, September 7, 2013
Hard to believe it is September already!
Keira is doing great. She had chemo two days last week so her appetite isn't as good as it could be but she is still eating well. When we were in the hospital a couple of weeks ago they wanted to give her a feeding tube but we convinced them to try an appetite stimulant first and she has put on 3.5 pounds since then which is a lot for someone so small.
On Thursday she was fitted for leg braces, she needs them because one of her medications affects her reflexes and she has been having a hard time walking. The braces are actually really cute she got to pick a design and she doesn't seem to be too concerned about them. The only issue is that she has to wear high top sneakers with them and we haven't picked them up yet. This might not seem like a big deal but Keira likes to wear dresses all the time and not just casual dresses but very fancy dresses with pretty shoes. Any time I try to put her in sneakers it is a battle so hopefully we'll be able to find dresses that work with high tops.
Tonight our amazing neighbors took us out to dinner for my birthday and Keira got sick at the table, it was a shock because she hasn't been sick since we were on vacation a couple weeks ago. The restaurant cleared out and I'm sure there were some complaints. I felt awful but while I was cleaning her up our friends cleaned up the table and she got through the rest of the meal without issue. We were able to have a great time despite everything.... a glass of white wine makes it easier to deal with pretty much anything!
The hardest thing about childhood cancer is that it never takes a break. Even when Keira seems to be fine there is always something she is struggling with. We are very lucky that her treatments have become much less intense and are "supposed" to get even easier as we approach her one year anniversary in December. As an outsider it might be hard to believe but there are times that I don't even think about everything that is going on with her. Unfortunately, there is always a reminder to bring us back to reality.
On Thursday she was fitted for leg braces, she needs them because one of her medications affects her reflexes and she has been having a hard time walking. The braces are actually really cute she got to pick a design and she doesn't seem to be too concerned about them. The only issue is that she has to wear high top sneakers with them and we haven't picked them up yet. This might not seem like a big deal but Keira likes to wear dresses all the time and not just casual dresses but very fancy dresses with pretty shoes. Any time I try to put her in sneakers it is a battle so hopefully we'll be able to find dresses that work with high tops.
Tonight our amazing neighbors took us out to dinner for my birthday and Keira got sick at the table, it was a shock because she hasn't been sick since we were on vacation a couple weeks ago. The restaurant cleared out and I'm sure there were some complaints. I felt awful but while I was cleaning her up our friends cleaned up the table and she got through the rest of the meal without issue. We were able to have a great time despite everything.... a glass of white wine makes it easier to deal with pretty much anything!
The hardest thing about childhood cancer is that it never takes a break. Even when Keira seems to be fine there is always something she is struggling with. We are very lucky that her treatments have become much less intense and are "supposed" to get even easier as we approach her one year anniversary in December. As an outsider it might be hard to believe but there are times that I don't even think about everything that is going on with her. Unfortunately, there is always a reminder to bring us back to reality.
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