Keira came home from the hospital last
night around 7PM. Over the course of 30ish hours she had five
different types of Chemo therapy administered. Amazingly, she is
doing great and took it all in stride. Today she woke up with what
seems like boundless energy and she has been playing with her brother
all morning. I uploaded a video of them being silly. It is so nice to
see here playing and having fun, I was not expecting her to have so
much energy and be in such great spirits. Her brother can really bring out the best in her.
Keira's treatment road map has changed
since we found out that she is not in remission. She will require
more intense Chemo and the treatment course has been lengthened from
2.5 to 3 years. Her doctors fully expected her to be “good risk”
but now she is considered “high risk”. This sounds worse then it
is, basically her curability rate changed from 80 to 90 percent to
75. Obviously this is not what we were hoping for but it could be
much worse. At this stage, they expect to be able to treat her
exclusively with Chemo therapy and there is no reason to believe that
she will require a bone marrow transplant or radiation. That is
really good news and we'll take what we can get
As you can imagine this news was
difficult for us to hear and process. We are doing the best we can to
be there for Keira but if I'm being honest our little girl is lending
us some of her strength. I've never met a more courageous little
girl.
Keira will go in for blood transfusion
on Tuesday and more Chemo later in the week. As always the positive
energy and good vibes that everyone is sending us means the world.
Please keep Keira in your thoughs and prayers!
That video made me smile from ear to ear! Love those two! xoxo Annalisa :-)
ReplyDeleteThat video is awesome! I hope those were washable ;-)
ReplyDeleteThanks for keeping us updated and sharing these very special moments with us.
I love seeing the both of them enjoy each other and having a blast. Thinking about you all constantly!!!
ReplyDeleteGood luck tomorrow (really today since it's after midnight). Love you guys!
ReplyDeleteThey are adorable Sharon!! Best of luck today, and I too love hearing about Keira and how your all doing :)
ReplyDeleteLuckily they used dry erase markers so it was easy to get off and luckly I had already bathed them when Keira's fever broke out so she didn't have to show up at the E.R. as a "tiger".
ReplyDeleteSharon, Thanks for sharing... they seemed really revved-up and having a GREAT time! Oh this tape is going to be great to use when they are teenagers or in college... Tiger... the ER staff would have loved it!
ReplyDeleteSO SO SO PRECIOUS...you are all in my thoughts every minute of every day!!!! love yas
ReplyDeleteBig Hugs and Kisses to you two!! We miss being with you guys!!! Steve and I came down with the flu and we cannot be with you all. This is such a great way to be able to see your funny faces and joyful laughter!!! Love Aunt Colleen and Uncle Steve, Ray and Jen too.
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