Sunday, January 13, 2013

There will never be a medicine or therapy as powerful as a twin



Keira came home from the hospital last night around 7PM. Over the course of 30ish hours she had five different types of Chemo therapy administered. Amazingly, she is doing great and took it all in stride. Today she woke up with what seems like boundless energy and she has been playing with her brother all morning. I uploaded a video of them being silly. It is so nice to see here playing and having fun, I was not expecting her to have so much energy and be in such great spirits. Her brother can really bring out the best in her. 

Keira's treatment road map has changed since we found out that she is not in remission. She will require more intense Chemo and the treatment course has been lengthened from 2.5 to 3 years. Her doctors fully expected her to be “good risk” but now she is considered “high risk”. This sounds worse then it is, basically her curability rate changed from 80 to 90 percent to 75. Obviously this is not what we were hoping for but it could be much worse. At this stage, they expect to be able to treat her exclusively with Chemo therapy and there is no reason to believe that she will require a bone marrow transplant or radiation. That is really good news and we'll take what we can get

As you can imagine this news was difficult for us to hear and process. We are doing the best we can to be there for Keira but if I'm being honest our little girl is lending us some of her strength. I've never met a more courageous little girl.

Keira will go in for blood transfusion on Tuesday and more Chemo later in the week. As always the positive energy and good vibes that everyone is sending us means the world. Please keep Keira in your thoughs and prayers!  

9 comments:

  1. That video made me smile from ear to ear! Love those two! xoxo Annalisa :-)

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  2. That video is awesome! I hope those were washable ;-)
    Thanks for keeping us updated and sharing these very special moments with us.

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  3. I love seeing the both of them enjoy each other and having a blast. Thinking about you all constantly!!!

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  4. Good luck tomorrow (really today since it's after midnight). Love you guys!

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  5. They are adorable Sharon!! Best of luck today, and I too love hearing about Keira and how your all doing :)

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  6. Luckily they used dry erase markers so it was easy to get off and luckly I had already bathed them when Keira's fever broke out so she didn't have to show up at the E.R. as a "tiger".

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  7. Sharon, Thanks for sharing... they seemed really revved-up and having a GREAT time! Oh this tape is going to be great to use when they are teenagers or in college... Tiger... the ER staff would have loved it!

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  8. SO SO SO PRECIOUS...you are all in my thoughts every minute of every day!!!! love yas

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  9. Big Hugs and Kisses to you two!! We miss being with you guys!!! Steve and I came down with the flu and we cannot be with you all. This is such a great way to be able to see your funny faces and joyful laughter!!! Love Aunt Colleen and Uncle Steve, Ray and Jen too.

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